The Trust actively promotes research with a view to improving future care. Researchers can improve how physical and mental health can be treated and prevented.
As a data controller Southern Health rely upon
- Article 6(1)(e) ‘…a task carried out in the public interest or in the exercise of official authority vested in the controller’
- Article 9(2)(j) ‘…scientific or historical research purposes’
as our lawful basis for processing your information under the General Data Protection Regulation and Data Protection Act 2018. This means we do not rely upon your consent for our Researchers to access information we have collected about you.
However, we do rely upon your consent for you to actively take part in a research study.
To enable you to have the opportunity to take part in local research with Southern Health you might receive a letter, email, text message or phone call asking if you would like to receive further information about specific individual local research studies that might be relevant to your health. However, you do have the right to opt out of your personal confidential information being used for research and planning, as mentioned below.
You have the right to ask us not to send any further communication about our local research.
Whilst actively taking part in a research study you would have the right to withdraw your consent at any point, however, you would not have the right to the information already collected as part of the research study to be erased.
We would never publish the outcome of our research studies in a way that would personally identify you.
Our Trust also uses an IT system known as UK CRIS (Clinical Record Interactive Search). This system has a copy of your Southern Health clinical record in it and is used for research by approved researches. However, all personal identifiable information about you has been removed so you cannot be identified.
If you are happy for your personal confidential information to be used for both your individual care and treatment and research and planning, you do not need to do anything.
However, if you do not want your personal confidential information used for any research and planning you have the right to nationally object/Opt out to your information being used for research and planning by registering your choice via https://www.nhs.uk/your-nhs-data-matters.
The Trust will honour your national choice to opt out of your confidential patient information being used for planning and research purposes where we are legally required to do so.
If you do choose to opt out you can still consent to your data being used for specific individual research and or planning purposes.
For further details on how your information is used in research please visit the Health Research Authority - patient information, health and care research or you can contact our:
Research and Development (R&D) Department
Tom Rudd Unit
Telephone: 02380 475 373
Information about our current research studies and sponsor details can be found on our web page.